Tag Archives: chronic illness

prescription addiction: small towns not immune to rising opioid epidemic, Part 3

By Jacki Wood, written for the Nodaway News Leader, March 2016

Editor’s note: this is the third part in the series; the names have been changed to protect their privacy.

An estimated 1.9 million people abused or were addicted to prescription opioid pain medication in 2014.

Those findings from SAMHSA were highlighted March 15 when the CDC released new guidelines aimed to reduce the risk of opioid addiction.

The voluntary guidelines are based on emerging evidence for patients with chronic pain not related to cancer treatment, palliative or end-of-life care.

Among the recommendations are that doctors try pain relievers like ibuprofen before prescribing highly addictive painkillers such as hydrocodone and oxycodone.

Other recommendations include non-prescription treatments such as exercise therapy, tai chi, yoga, weight loss, psychological therapies, interventions to improve sleep and certain procedures.

“It has become increasingly clear that opioids carry substantial risk but only uncertain benefits,” Dr. Thomas R. Frieden, CDC director, said, “especially compared with other treatments for chronic pain.”

***

As Adrianna’s mom became more addicted to the pain meds prescribed by her doctors for her chronic illness, the worse things got at home.

She began seeing problems in her parents’ marriage and her mom finally moved out which surprisingly was a relief for Adrianna.

Her mom had been texting hateful, degrading messages and posting belittling statuses on social media about her. She eventually had to block her phone number and report and block her on social media sites.

“I wanted her out of my life,” she said. “It wasn’t my mom; it was a monster in my mom’s body.”

***

Pat Giffin, RN and emergency department nurse manager at SSM Health St. Francis Hospital, said people don’t intend to become addicted to opioids, they just want something to take away their pain.

“Opioid addiction can make people do things they never would have thought of doing before the addiction, just to get more of the drug,” she said.

The hospital is currently working with SSM Health’s legal department to develop a notice for the emergency department stating that the hospital will not prescribe narcotics unless there is an acute reason.

“Prescribing opioids to patients who do not need them for acute pain only results in addiction and more problems for the patient,” Giffin said. “Chronic pain issues need to be handled by one physician so that the usage can be monitored and controlled.”

***

That was the issue with Bethany’s step-father. His opioid use was not being carefully monitored or controlled by his doctors and the hospital.

And even though everyone around her seemed to know about it, she said, no one would talk.

Until someone finally did.

“Looking back now, as a mother of three, I am in shock that it took someone as long as it did to make the call,” she said.

After hearing that Bethany’s dad was slurring his words and saying really hateful things to her, a friend’s mom spoke up.

“It was humiliating, and at the same time, I felt like I was going to be in trouble for exposing our family secret,” she said.

***

Six organizations representing Missouri healthcare providers issued recommendations in December to reduce opioid painkiller misuse and abuse.

The Missouri Academy of Family Physicians, Missouri Association of Osteopathic Physicians and Surgeons, Missouri College of Emergency Physicians, Missouri Dental Association, Missouri Hospital Association and Missouri State Medical Association jointly recommended that healthcare providers adopt the recommendations.

Many of the state’s emergency departments have existing systems, however, there has not been a consistent set of guidelines statewide for providers throughout the state.

Dr. Evan Schwarz, Fellow of the American College of Emergency Physicians and MD at Barnes-Jewish Hospital in St. Louis, said emergency physicians deal with opioid misuse and abuse on a daily basis.

“This is an important initial effort to address the problem of prescription drug abuse,” he said. “However, in the long run, it will require a multi-disciplinary, public-private approach to provide treatment, reduce abuse and its costs.”

***

Shortly after the call about her step-father’s behavior, law enforcement officers and a Family Services representative visited Bethany’s home.

They discussed what had been reported and her mom reassured them they were fine and that Bethany had exaggerated the situation.

“A pot of coffee later, they were driving away,” she said, feeling even more hopeless about the situation.

However, a follow-up visit came shortly thereafter, and with it, a stern warning that her step-father needed to get help.

Nine days later, they moved halfway across the country.


prescription addiction: small towns not immune to rising opioid epidemic, Part 2

By Jacki Wood, written for the Nodaway News Leader, March 2016

Editor’s note: this is the second part in the series; the names have been changed to protect their privacy.

“The opioid epidemic has been called the worst drug crisis in American history,” wrote Dan Nolan and Chris Amico in their Frontline special, “Chasing Heroin,” on February 23.

“Death rates now rival those of AIDS during the 1990s, and with overdoses from heroin and other opioids now killing more than 27,000 people a year, the crisis has led to urgent calls for action.”

***

Adrianna
After being diagnosed with the chronic illness, Adrianna’s mom received a prescription to deal with the pain and their way of life changed very quickly.

Gone were the days of shopping and getting their nails done together, doing makeovers, talking until two in the morning.

“I started noticing a real difference in her,” Adrianna said. “She would come home (from work) and go straight to bed.”

Barely 16, Adrianna wasn’t really sure what was happening.

“My mom was either yelling at me or ignoring me,” she said. “She would tell me she didn’t love me. And never did. She would tell me she never wanted to see me again.

“Then a couple of hours later, she would say she was sorry.”

And that was just the beginning.

***

Over the last 15 years, opioid deaths have jumped 369 percent while heroin deaths have risen 439 percent, the CDC reports.

Heroin use is growing in popularity as a direct result of prescription painkillers.

Ninety-four percent of people in treatment for opioid addiction said they started using heroin because it was far cheaper and easier to get than prescriptions painkillers.

Nolan and Amico wrote: “Over the course of more than a decade, it has grown into a problem destroying lives across the nation, regardless of age, race, wealth or location.

“Nearly 90 percent of the people who tried heroin for the first time in the past decade were white. And a growing number are middle-class or wealthy.”

The opioid epidemic is erasing the stereotypes of drug abuse. It’s soccer moms and CEOs and even grandmothers.

Last July, the CDC found “significant increases in heroin use were found in groups with historically low rates, including women and people with private insurance and higher incomes. The gaps between men and women, low and higher incomes and people with Medicaid and private insurance have narrowed.”

***

Emergency departments across the country are also feeling the effects of the growing problem.

Between 2005 and 2014, the rate of hospitalizations and emergency department visits from opioid overuse in Missouri has more than doubled, according to the Missouri Hospital Association.

Pat Giffin, RN and emergency department nurse manager at SSM Health St. Francis, said the hospital in Maryville is dealing with similar trends.

“We are seeing a lot of Norco (hydrocodone) use and abuse,” Giffin said. “It has substantially increased in the past couple of years.”

***

Bethany
More than 20 years after her step-father’s car accident, where he was initially prescribed opioids for the pain, Bethany’s younger brother finally learned the truth about those emergency room visits from his childhood.

The 30-year-old youth pastor and father of four was astounded by the revelation.

“Do you realize I spent most of my childhood in an emergency room?” he said to her. “Mom had to drag me along to the ER when he had to get a shot for the ‘pain.’ All the soccer and baseball and basketball games missed…

“All because he was a drug seeker? It was preventable? It was all a lie?”

While Bethany was saddened by his disappointment, she was not surprised.

“Those physician-prescribed drugs ruled our life, and sadly, destroyed relationships and severed family ties,” she said.

***

Missouri is the only state in the nation, Giffin said, without a prescription drug monitoring program.

She said MHA issued a policy in November stating: “The absence of a prescription drug monitoring program through a registry system impedes the ability of physicians, pharmacists and hospitals to evaluate patients’ complete prescription and utilization profile.

“The use of a prescription drug monitoring program may be one effective strategy to help identify patients who may be seeking multiple providers and would benefit from opioid diversion.”

***

The chronic illness became too much for Adrianna’s mom to handle.

“It felt like she gave up on everything,” she said.

And that’s when she started abusing the medicine prescribed by her doctors.

“She held herself differently and sometimes I could barely understand what she was saying,” Adrianna said. “I tried to talk to her about it but she didn’t care about me or my opinion.”

With her dad working long hours – and not feeling like she could share her situation with her friends – Adrianna began to feel very alone.

“My life wasn’t supposed to end up like this,” she said.


How are you feeling?” – Ugh!

I get tired of people asking me if I “feel better.” Or even how I’m “feeling.”

People don’t really want an honest answer to that. And most people don’t give an honest answer.

Fine. Ok. Good.

Those generally aren’t very honest.

I love it when people say, “It’s good to see you.”

There are a couple of ladies at church who know about my health struggles and that’s what they say when they see me. Then I don’t have to address it. And, you know, it always feels good to be seen.

Whether you’re having a terrible, horrible, no good, very bad day like Alexander … or you’re actually feeling really great and invincible, it’s always nice to know that people are happy to see you.

Fibromyalgia can be a fickle thing. I can feel fine for a few days, get a lot done, feel invincible. And then, bam, I’m down for the count.

I guess I don’t mind so much when people ask “How’s it going?” That doesn’t have to have an answer that relates to how I’m feeling. I can talk about work or the kids or whatever and not have to bring up my health.

It’s difficult for most of us to know what to say to people when they’re going through something, an illness, a trial, a time of difficulty.

How are you comforted, especially when there’s nothing you can do for someone?

I like a simple “hang in there.” It lets me know they’re thinking of me.

So whatever it is you’re going through … fibromyalgia like me or MS or dealing with a parent with dementia or a daughter with autism or a recent job loss … hang in there.

And remember this from Psalm 30:5 – “Weeping may endure for a night, but joy cometh in the morning.” I don’t know when that morning will come, but I do BELIEVE that it will come.


Help thou mine unbelief

Blog post:

My husband says it must be what a toothache feels like. You know, when you can’t get in to the dentist yet and you have to wait and the pain totally consumes you. For a day or two. Except this has lasted for 17 years now.

My forearms hurt and sometimes the palms of my hands and even my thumbs and fingers. My triceps hurt and my shoulders. My neck and all the muscles down my spine and my hips. Up and down my legs. Especially the muscles on the outside above my ankles. There are times when I feel like my ribs and spine are crushing me and I can’t breathe.

I sometimes have no strength, not even enough to hold a pen in my hand and write a note. Or stand in the kitchen long enough to cook a simple dinner. And I have tension headaches that can last for days.

And then there’s sometimes this fog. I can’t think straight. I can’t remember things, even little things. Everything is just kind of fuzzy. There are also bouts with depression.

I can’t sleep. I can’t fall asleep because I hurt so much. And I can’t stay asleep once I do. So I’m tired. Exhausted. In pain. And moody.

And consequently, I’m frequently short with my family. And then I pile guilt on top of everything else for being short with them. It’s not their fault. It’s no one’s fault. But that’s hard to remember when you hurt everywhere and you haven’t had an average night of sleep in six days.

So I retreat to my room, close the door and hide in my bed. I miss out on much of life. They go off on these fun adventures. They invite me along, but I know it won’t be fun for anyone if I go. They say it will be okay, but I know the times I’ve gone when I feel like this hasn’t been all that great for them. Or for me.

This is my life. It has been for the last 17 years. Some hours, days, weeks and months are better and some are worse than others. There are times when I feel strong and I feel I can do anything. And there are times when I feel so small and hopeless and alone.

It’s physically exhausting for me to even go out and shoot baskets, one of the things that used to bring me great joy. I try to walk on the treadmill for even half an hour and then I’m done for the rest of the day.

I do push myself, though. I push myself to go into work two days a week. And I’m grateful for laptops and iPads so I can work in bed the rest of the time. I also sometimes push myself to go to my kids’ activities. I’m happy to say I made it to every one of my daughter’s volleyball and basketball games this year. That’s really hard with the drive to games and the bleachers. Oh, the bleachers.

And I try to use laughter as much as possible. I try to find humor in the smallest of things and laugh out loud. Because laughing releases endorphins, the body’s natural feel-good chemicals, and I need every feel-good anything I can get to combat the pain.

And when I have to be in public, I try my very best to hide it all, to fake it, until I can make it back to my bed where people don’t judge me. I’ve gotten pretty good at that, faking it, I mean. But sometimes it’s all just too much to hide.

It’s been really bad the past few months. I’ve seen some pretty dark days. So I’m trying to rise above that. I struggle to know what that means though. I guess I’m trying to accept the life that’s been given to me. I don’t know if, in 17 years, I’ve actually tried to do that. I always thought it would eventually get better. But it’s hasn’t. I think it’s actually gotten worse lately, as bad as it’s ever been.

This is not the life I thought I’d be living. So what is it I’m supposed to be doing? How can I turn this so-called weakness into a strength? I don’t know yet. But I think I’m ready to try and figure it out.

And then a few hours later, I’m ready to throw in the towel again and give up.

“Jesus said unto him, If thou canst believe, all things are possible to him that believeth. And straightway the father of the child cried out, and said with tears, Lord, I believe; help thou mine unbelief” (Mark 9:23-24).

So, here we go… I believe. Help thou mine unbelief…